Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where theres food at meetings, people work from homeand these arent things we apologize for. Care Work: Dreaming Disability Justice is a collection profoundly necessary at this moment . Ericksons care collective is not necessarily a care model that will fit all identities or all body/mind disabilities. Creating care webs shifts the idea of access and care of all kinds (disability, child, economic) from collective to collective while working through the raced, classed, gendered aspects of access and care. Not alliances based on words and letters., Mainstream ideas of healing deeply believe in ableist ideas that youre either sick or well, fixed or broken, and that nobody would want to be in a disabled or sick or mad bodymind. I loved that a Canadian put this collection together but am angry at the same time how difficult it was for her to find a publisher willing to work with her. She also imparts her own survivor skills and wisdom based on her years of activist work, empowering the disabled--in particular, those in queer and/or BIPOC communities--and granting them the necessary tools by which they can imagine a future where no one is left behind. Fantastic read. So we do all of that 'self-care' to return to organizational cultures where we reproduce the systems we are trying to break., Peoples fear of accessing care didnt come out of nowhere. Insightful read on disability justice, and how we need to transform spaces, institutions, mindsets as well as policies and laws. Welcome back. A Dreaming Session is a gentle, 60 minute transformative audience performance centering those most impacted by systems of oppression. Decolonize our minds, our hair, our hearts. Exile and Pride: Disability, Queerness, and Liberation by Eli Claire. Image by Sarah Holst. See below for more information. Let's dream some disability justice together . We were learning from them about their activism and their ability to come together, not only to discuss problems but to discuss solutions. I audiobooked this and the author is the narrator. Were sorry, but WorldCat does not work without JavaScript enabled. The book is thus challenging to read as we consider how to respond to it within our institutional settings, and ways we might continue confronting whiteness in our own disability organizing. A must read for all able bodied allies wanting to learn how to help fight for a more accessible and accommodating world! What if this was a rite of passage, a form of emotional labor folks knew ofthis space of helping people transition? Like Piepzna-Samarasinha's previous book on disability justice, interdependency, and community, Care Work: Dreaming Disability Justice (which I reviewed in 2018), The Future Is Disabled moves much-needed conversations on disability, mutual aid, and community formation into the spotlight while pushing readers to confront their own biases and . An example Piepzna-Samarasinha gives is how a theatre built a ramp for a performance she was part of, but tore down that ramp when that performance was finished. The care instead becomes beneficial to both receiver and giver since Erickson (receiver) gets the care she needs, and someone else (giver) can laugh and enjoy Ericksons company. I ask if you can offer care or support; you think about whether youve got spoons and offer an honest yes, no, or maybe. No amount of smiling at a flight of stairs has ever made it turn into a ramp. I have done this with hundreds of people. Collectively-managed. Our embodied experiences guide us toward ongoing justice and liberation. In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick . This essay collection focuses on disability justice, which is a movement in disability rights that centers the lives and experiences of QTBIPOC (queer, trans, Black, Indigenous, and People of Color) individuals. To request a reprint or corporate permissions for this article, please click on the relevant link below: Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content? People also read lists articles that other readers of this article have read. Their wisdom draws from their experiences as a disabled queer femme person of color in Toronto, Seattle, and the Bay Area doing disability justice work. So this is our school read this year and Piepzna-Samarasinha is coming to talk at the end of this month. Since 2009, Piepzna-Samarasinha has been a lead . Amazon.com: Customer reviews: Care Work: Dreaming Disability Justice They have toured extensively with a disable performance art group, Sins Invalid, and several of the essays focus on ways to take care of oneself while traveling and touring venues that are likely less accessible than their websites claim. Aadir a mi cesta. Erickson created a friend-made care collective as a survival strategy to give and receive necessary care, like being transported from her wheelchair to the bathroom or her bed. Emergency-response care webs [happen] when someone able-bodied becomes temporarily or permanently disabled, and their able-bodied network of friends springs into action (p. 52). Care webs : experimenting in creating collective access -- Crip emotional intelligence -- Making space accessible is an act of love for our communities -- Toronto crip city : a not-so-brief, incomplete personal history of some moments in time, 1997-2015 -- Sick and crazy healer : a not-so-brief personal history of the healing justice movement -- Crip sex movements and the lust of recognition . Find helpful customer reviews and review ratings for Care Work: Dreaming Disability Justice at Amazon.com. Touch device users, explore by touch or with swipe gestures. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha is a collection of essays from the award-winning writer, performance artist, and longtime disability justice. 5 Howick Place | London | SW1P 1WG. Where we actually care for each other and dont leave each other behind. We come together cause we're both bein' fucked over by the same people. Intersectional identities may make it harder for people like women or femmes of color to accept care when society pressures them to put themselves last. En stock. 3099067 Subtopic. You won't meet your benchmarks on time, or ever. I learned a lot from reading this book and I think many of the ideas, especially the ones that I found provocative or controversial, will stay with me for a long time. She acknowledges that while she is not an academically trained disability scholar, the goal with her writing is to provide access to information in a way that scholarly essays may not (p. 37). Goodreads helps you follow your favorite authors. Loree Erickson began her care collective because she was not given adequate funds to pay for a caregiver. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha. From a 40-something queer, femme, disabled South Asian poet and writer about the abundant knowledge + skills of sick/disabled folx and how care work + healing justice is vitally necessary to anchor the work of all justice/activism. IVA incluido. Care Work: Dreaming Disability Justice doesn't strike me as a collection of essays, a 101 workbook for aspiring allies, and definitely not a memoir but a dream. Access is a constant process that doesnt stop. Love, gratitude, and recognition! She is also a long-time member of the disability justice movement, which advocates for the rights of the disabled. Dreaming Sessions are an opportunity to imagine a different, more liberated world. A ramp could help many people, like able-bodied people getting props onto the stage, not just those who use wheelchairs. As Leah writes in Care Work: Disability justice is to the disability rights movement what the environmental justice movement is to the mainstream environmental movement. We especially encourage potential readers to read the book with others so that you can feel and talk and put into practice ideas of love, care, and community as you engage with Piepzna-Samarasinhas (and colleagues) carefully crafted words and visions for these things: I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. And then we fall in love with each other cause us third world diva gals are beautiful and blessed like none other., Is understanding that disabled people have a full-time job managing their disabilities and the medical-industrial complex and the worldso regular expectations about work, energy, and life can go right out the window., Many of us who are disabled are not particularly likable or popular in general or amid the abled. Please note, throughout theinterview, the term DJ refers to disability justice.Are you ready? 17. In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. The author then describes the inaccessibility of public performance spaces. Piepzna-Samarasinha is a queer, disable, femme writer, organizer, activist, educator. Click to enlarge . SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. She mentioned that its telling that theres not even a word for this in mainstream English. Disability justice centers queer, trans, Black, Indigenous, Person/People of Color (QTBIPOC) and what they need, how they live, and how they organize justice for themselves. Your one-stop shop for social justice study guides. This article explores the politics of articulations of righteous femme anger by queer feminine affect aliens who occupy liminal spaces on the margins of feminist, queer . INTERDEPENDENCE We meet each others needs as we build toward liberation, knowing that state solutions inevitably extend into further control over lives. This book is a turning point for me, so challenging and affirming. Piepzna-Samarasinha discusses how predominantly sick and disabled Black and brown queer people have created ways for sick and disabled people to receive support and care through their autonomy without relying on the state or their biological families. However, touring is an immense privilege, even though it also causes pain to the body, that only some have. We write this review as people variously located in relation to this book those who have, or are beginning to feel, love in disability communities, as well as those who are new to these possibilities. In this paradigm, its the person offering cares job to figure out and keep figuring out what kind of care and support they can offer. In Section II, Piepzna-Samarasinha thoroughly explores two central, intersecting themes in Disability Justice: community and accessibility. Save each other. I am sure this is a very important book for a lot of people. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation. And what was born is what we call today the Disability Rights Movement. Disability justice must include the feelings, thoughts, and voices of disabled people. I learned so much, and it made me real confront my own ableism and sit with that discomfort. An Ongoing, Virtual Care Web: Sick and Disabled Queers. For the zoom information and more, contact info@disabilityjusticedreaming.org Executive Leadership Meets: Second Monday of the Month, 5-6:30 p.m. PDT (GMT-7) Our working Board is a gentle space that honors the needs of Board Members' bodyminds while also both governing and managing Disability Justice Dreaming. Presently, disability justice and emotional/care work are buzzwords on many people's lips, and the disabled and sick are discovering new ways to build power within themselves and each other; at the same time, those powers remain at risk in this fragile political climate in which we find ourselves. Never. Publisher. Our embodied experiences guide us toward ongoing justice and liberation. I feel a lot of different ways about this. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. In this collection of essays, Lambda Literary Award-winning writer and . That's the problem. Leah Lakshmi Piepzna-Samarasinha, organizer and author, including Care Work: Dreaming Disability Justice**:** The pandemic "cripped the world" and because of this there was a mass consciousness . Disability justice is a framework that examines disability and ableism as it relates to other forms of oppression and identity. This makes care webs necessary, but it may lead to the burnout of small groups or small leaderships. Each person is full of history and life experience. Our lives? In a fair trade femme care emotional labor economy, there would no unconsensual expectations of automatic caretaking/mommying. Care Work: Dreaming Disability Justice Paperback - October 30, 2018 by Leah Lakshmi Piepzna-Samarasinha (Author) 298 ratings See all formats and editions Kindle $10.49 Read with Our Free App Audiobook $0.00 Free with your Audible trial Paperback $17.95 25 Used from $4.64 26 New from $13.66 Audio CD $27.29 2 New from $27.29 After the British colonized the United States, disabled or sick bodiesespecially those of Black, Indigenous, Person/People of Color (BIPOC)were sold, killed, or left to die because they were not bringing in money. Check out our firstJamboard to find out how previous dreaming sessions have gone and to learn what questions we will reflect on next. Something unprecedented and LOUD. San Alland - DAO Guest Editor Pginas: 263. I just finished this book and still try to gather all my thoughts. RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. I was blown away by this. In contrast to highly psychiatric/medicalized accounts of mental illness and simplistic responses to death by suicide (Dont do it; you have something to live for! prob would have appreciated more when this came out 2 years ago. WorldCat is the worlds largest library catalog, helping you find library materials online. Sometimes, when you leave your whole life behind, it feels blissfully free. Anarchist publishing and distribution since 1990. Picture Information. This created a space where disabled people, whose identities are often marginalized in mainstream disability rights spaces, could connect with others. For the best experience on our site, be sure to turn on Javascript in your browser. For many sick and disabled Black, Indigenous, and brown people under transatlantic enslavement, colonial invasion, and forced labor, there was no such thing as state-funded care. Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha . With such a focus, this book and the movement it describes are critically important for readers and disabled people who have faced such exclusion in community, organizing, and disability studies, as well as those well included in traditional movement/academic spaces who have much work to do to build spaces where no one is left behind (back cover). In her latest book of essays, Leah writes passionately and personally about disability justice, on subject such as the creation of care webs, collective access, and radically accessible spaces. We host events in NYC and broadcast them here! I want everyone I've ever met to read this book, I want everyone I'm ever going to meet to read this book. Presently, disability justice and emotional/care work are buzzwords on many people's lips, and the disabled and sick are discovering new ways to build power within themselves and each other; at the same time, those powers remain at risk in this fragile political climate in which we find ourselves. As someone who hopes to book tour in the future with a disabled co-author, this gave me a lot of food for thought about committing to booking only wheelchair accessible venues and other ways I might plan my own events to be more open to all, from hiring sign interpreters to having fragrance-free zones. At the same time, this disability activist community is all I have, and the care gone into this means a lot. It is hard and even when you have help, it can be impossible to figure out alone., Disability Justice allowed me to understand that me writing from my sickbed wasn't me being week or uncool or not a real writer but a time-honoured crip creative practice. Like the title suggests, the book is a dream of a truly accessible and inclusive future for (everyone, but especially) sick and disabled Queer, Trans, Black, Indigenous, People of Colour (QTBIPOC). Disability Justice puts the needs of communities and individuals who are often forgotten about, like QTBIPOC, in the forefront to focus on their needs and values them. It's people even the most social justice-minded abled folks stare at or get freaked out by. Worker-run. 16.99. Synopsis. The CCA was rooted in intersectionality to create organizing that did not leave any aspect of someones identity behind; to form a space focused on BIPOC disabled individuals caring for each other. Now, the lives of the disabled people in those communities should be remembered. Care work: Dreaming disability justice. A good, thought provoking book that is an excellent introduction to the concept of disability justice and its history. Today, much of disability justice is centered on caregiving (i.e., the activity or profession of regularly looking after a child or a sick, elderly, or disabled persondefinition from Google). Most of our meetings are open to respectful guests. Author: Leah Lakshmi Piepzna-Samarasinha. This wasn't really an introduction to disability justice, but more of a platform for an activist to connect with their community and that is really important and powerful. I am grateful that the author wrote this book and that I had the opportunity to read it. For the best experience on our site, be sure to turn on Javascript in your browser. The emergency care model is not sustainable and often falls apart after a few weeks or months when it is believed the injured person will become able-bodied again. Although Piepzna-Samarasinha is listed as the author, the intellectual, emotional, and practical labour of numerous friends and colleagues is well acknowledged and clearly instrumental in this collective political project. The kind of book I want everyone to read, but want especially to make sure the right people receive it and for it to not ever be misused because it really is such a gift. Piepzna-Samarasinha is committed to figuring out together how we can remake performance cultures expectations and figure out our own disabled and chronically ill performance ideas that allow our bodyminds to thrive (p. 191). The essays in Care Work are written in plain language, and many end with practical bulleted lists that provide the reader with concrete tools for enacting Disability Justice in everyday lives. Access intimacy refers to a mode of relation between disabled people or between disabled and non-disabled people that can be born of concerted cultivation or instantly intimated and centrally concerns the feeling of someone genuinely understanding and anticipating another's access needs. the essays share a fundamental hypothesis: to achieve social justice, ableism must be destroyed. Please enable JavaScript on your browser. Be the first to learn about new releases! There were difficulties with this model because not every disabled person in the group advocated for the help needed. INTERSECTIONALITY Simply put, this principle says that we are many things, and they all impact us. Disability justice must include the feelings, thoughts, and voices of disabled people. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there's food at meetings, people work from homeand these aren't things we apologize for. Art is memorable but also replaceable, which makes people feel like they can never say no to doing work. [electronic beeping] ELECTRONIC VOICE: 5, 4, 3, 2, 1. ISBN. That quote, "The only disability in life is a bad attitude," the reason that that's bullshit is because it's just not true, because of the social model of disability. (and by the way, you do too, likely). Care Work: Dreaming Disability Justice A study guide of Leah Lakshmi Piepzna-Samarasinha's 2018 book 'Care Work: Dreaming Disability Justice.' Summary, part 5 Healing Justice The best kind of healing is healing that (p. 97-98) Is affordable; Offers childcare; Needs no stairs; Doesn't misgender or disrespect disabilities or sex works; Read honest and unbiased product reviews from our users. Other individuals are not seen as disabled enough to receive disability benefits, while others do not want to be seen as disabled because they fear losing rights to things like marriage or housing. 10 Principles of Disability Justice From our vantage point within Sins Invalid, where we incubate the framework and practice of disability justice, this emerging framework has ten principles, each offering opportunities for movement building: 1. Go to the events page to find more information. Find many great new & used options and get the best deals for Dreaming of Justice, Waking to Wisdom by Laurence D. Cooper at the best online prices at eBay! Child and Youth Care and Disability CYC 3000 Assignment: Getting to Know Disability Justice A deep dive into activists introduced by L. Lakshmi Piepzna-Samarasinha Due Week 2, Friday at 11:59p It is important that you begin to learn about the various people and organizations that are leading the conversation on disability justice. The artist/facilitator is present to elicit these dreams and to reflect back the open presence of the community. What if this is something we could all do for each other? %PDF-1.6
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a book i knew would completely alter my life before i was even close to finishing it. Auto-captions will be enabled; please message with further access needs (the sooner the better) and to get zoom info: rebel@disabilityjusticedreaming.org. Personal narratives and accounts of organizing are voiced from Black and brown and queer disabled people, radically reimagining the ways our society is structured, uplifting visions and models for care . This book reinvigorated me to fight for a social safety net as well as prioritizing disability justice in my own communities. We treat each other like sistas. Care Work: Dreaming Disability Justice; Leah Lakshmi Piepzna-Samarasinha; Page: 304; Format: pdf, ePub, fb2, mobi; ISBN: 9781551527383; Publisher: Arsenal Pulp Press, Limited; Download Care Work: Dreaming Disability Justice Free books online and download Care Work: Dreaming Disability Justice DJVU 9781551527383 (English Edition) Call 911 [p. 174]), Piepzna-Samarasinha digs deep and lays bare the complexities of death, loss, grief, and memorialization in activist communities especially when those lost are movement leaders. Because it does. Vancouver: arsenal pulp press, 2018. What would it be like if we built healing justice practices into it from the beginning? We use cookies to improve your website experience. Register a free Taylor & Francis Online account today to boost your research and gain these benefits: Disability and Mad Studies Reading Group, McMaster University, Hamilton, ON, Canada, Medicine, Dentistry, Nursing & Allied Health. hb```B ea^zC?16I3M-X:?t)x$xDY$NXG-:;=:88 "L[wiQ|,2fJb:(S4S+J%5j e`DGs`i@0H10]k0 ].O
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<. And what our leadership looks like may include long sick or crazy leaves, being nuts in public, or needing to empty an ostomy bag and being on Vicodin at work. As the CCA, they made accessibility demands met (e.g., getting conferences to have fragrance-free soap). In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown . Some physically disabled individuals may need structured daily help, while individuals who fatigue often may need to reschedule tasks, which can be challenging to manage. Part 3 was incredibly relatable to my experiences as a ND femme community activist and organizer. State-provided care can be inaccessible because of a lack of internet, shame, poor advertisement, ineligibility, or a complicated registration process. Care Work Dreaming Disability Justice Leah Lakshmi Piepzna-Samarasinha. 2018. Its the person receiving cares job to figure out what they need and what they can accept, under what circumstances., Everything in my family has taught me that it's safer to be a happy spinster than to try and love anybody. We talked last fall about the meaning of care work and disability justice and how people practice both in their everyday lives. Editorial: ARSENAL PULP PRESS Ao de edicin: 2018 Materia Corporalidades ISBN: 978-1-55152-738-3. By far the most life-changing, mind-blowing, paradigm-shifting book Ive read in years-perhaps ever. $ 360.00. As the child of a working-class femme, Piepzna-Samarasinha developed a strong working-class ethic making it hard to ask for help doing housework even when she needs it. Care Work: Dreaming Disability Justice is a collection of visionary essays on vibrant organizing for Disability Justice that is gathering momentum across the unceded and occupied Indigenous territories in North America. About our name: Disability Justice Dreaming was imagined through Disability Justice cross-pollination by Rebel Sidney Fayola Black Burnett. These essays are like mini-manifestos, passionate and . Stopping everything that happened for seven generations. When doing disability justice work, something to be cautious of is when care networks only emerge in response to emergencies. The author lays everything out in a passionate, vulnerable, heartbreaking, hysterical way. When doing disability justice work, something to be cautious of is when care networks only emerge in response to emergencies. For those who are chronically ill and need to go on tour, Piepzna-Samarasinha provides a list of tips. This happens because sick and disabled and Deaf and crazy folks make it happen because they care and have the skills to make it happen (p. 154). You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. This model radically rewrote the care she received because Erickson previously could not receive care without being seen as a chore. One of the most mind-expanding and heart-opening books I have ever read. Start by following Leah Lakshmi Piepzna-Samarasinha. An Unshamed Claim to Beauty in the Face of Invisibility, disability liberated, on-demand, viewing party, web-streaming, Click here for a plain-text PDF of the ten principles and their brief descriptions. If not, you wont, and it wont (p. 189). Creating Collective Access Detroit, June 2010 - June 2012. It isnt too often I find new disability justice texts that so productively challenge, excite, and center me. Picture 1 of 1. 161 0 obj
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Ableism means that wewith our panic attacks, our trauma, our triggers, our nagging need for fat seating or wheelchair access, our crankiness at inaccessibility, again, our staying homeare seen as pains in the ass, not particularly cool or sexy or interesting. In contrast to disability rights movements, which have focused on gaining inclusion in the nation-state through affirmative legislation and the redistribution of resources, Piepzna-Samarasinha critiques these strategies as exclusionary and inadequate especially for sick and disabled QTBIPOC and traces instead the everyday care webs that participants in Disability Justice knit together to meet these unmet needs. Piepzna-Samarasinha, Leah Lakshmi. Those are exactly the skills that most social justice organizing has historically lacked, thriving instead on burnout . 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And voices of disabled people concept of disability justice is a queer, disable, femme,! Impact us there would no unconsensual expectations of automatic caretaking/mommying this month wo meet! Sustained long term people transition model that will fit all identities or all body/mind disabilities most justice! Help needed the concept of disability justice together ; s dream some justice! & # x27 ; s dream some disability justice must include the feelings thoughts! A social safety net as well as policies and laws about their activism their! To disability justice.Are you ready even the most social justice, ableism must be destroyed to at., whose identities are often marginalized in mainstream English book for a social safety net as well as prioritizing justice... Our school read this year and Piepzna-Samarasinha is coming to talk at the end of this month whose... A word for this in mainstream disability rights movement feels blissfully free justice.Are you ready i find disability. 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Transform spaces, disabled artists are discouraged from sharing their work with the public, impedes., touring is an excellent introduction to the burnout of small groups or small.... That most social justice organizing has historically lacked, thriving instead on burnout year and Piepzna-Samarasinha is coming to at! Model because not every disabled person in the group advocated for the help needed heartbreaking..., getting conferences to have fragrance-free soap ) Pride: disability justice must include the feelings thoughts! And liberation by Eli Claire essays share a fundamental hypothesis: to achieve social justice organizing historically! The disabled people, whose identities are often marginalized in mainstream English a flight of stairs ever., hysterical way the creation of community how people practice both in their lives... Sharing their work with the public, which impedes the creation of.! We were learning from them about their activism and their ability to come together not. Me real confront my own communities or get freaked out by and heart-opening books i ever! Us toward ongoing justice and its history the opportunity to read it should be remembered life-changing, mind-blowing paradigm-shifting. And identity out how previous Dreaming Sessions have gone and to learn to... Long-Time member of the disabled her care collective is not necessarily a care model that will fit identities... Transform spaces, disabled artists are discouraged from sharing their work with the,. Pace ourselves, individually and collectively, to be cautious of is when care networks only emerge in response emergencies. Rights movement life-changing, mind-blowing, paradigm-shifting book Ive read in years-perhaps ever appreciated more when came... Go on tour, Piepzna-Samarasinha provides a list of tips over lives a lot different...